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Back into the new rhythm..

I thought I’d write down a few thoughts before bedtime, but it’s taken me 20 minutes to delete nearly 300 spam postings! Grrr! If you made a legitimate comment and I’ve just deleted it by mistake, please forgive me.

I’ve also totted up the funds that have come in from various amazing sources since we went to America – the coffee morning in Llandeilo, my amazing nieces’ coast-to-coast cycle, and a host of other events, some of which I;ve also posted about. The total has just passed £70k and there’s more still to add! I’m now starting to spend the money in earnest, small pieces of physio kit, cycle therapy, physio etc – and we’re looking to book a few days of therapy in one of the UK’s specialist places.

We’ve been home more than a fortnight now, and everything is going so well. Everyone who’s seen Immy up on her feet has been amazed, from her consultant paediatrician who was wide-eyed and clearly thrilled, to family members and friends everywhere. On her second day back in school she “walked” over the finish line in sports day in her walker, and yesterday I managed to “walk” her in and out of the swimming pool and stand her by the side of the bath to get her dry. None of these things would have been remotely possible before our trip.

Here’s a link to the latest video of Imogen walking in her frame:

When you compare this to how she walked beforehand (with and without splints), you’ll see the difference without too much difficulty – her legs already look more muscular and she’s so has so much more freedom.

Over the past fortnight she’s definitely become stronger through her legs and arms, and is inching closer to the point at which she can move independently in her walking frame. I think we’ve started to realise the scale of the challenge ahead though – so many of her muscles are weak and she lacks coordination and has a lot of muscle tightnes from 7 years of unbalanced use. However, it’s motivating to work hard when you can see progress, and believe, as we do, that the progress she makes will stay with her. Fitting the extra physio into the school routine is proving tricky – if I thought I was busy before….

It is just so exciting though!

and I can’t thank you all enough for your support that got us here!